Tried and True

With the scary news, I didn't know what to do. My first call was to my wonderful original oncologist at Sloan Kettering. Her reaction was positive & encouraging. I immediately made an appt to see her.

Upon seeing her, I hugged her & cried. She spent an hour and a half with me to talk options that would maintain my quality of life. "Why give you toxic chemo that might not work? We'll always have that in our back pocket if we need it." Excellent point!

She helped me find clinical trials near me that she believes are promising. More than anything she offered HOPE! And that goes a long way!

This crazy, unfair journey

The latest....

I had another scan in May with the ALL CLEAR. Then in August, we move to Chicago. My TX oncologist recommended RUSH hospital. The first visit was not smooth & I was not happy. Since they were highly recommended I stayed. I had a scan in Oct. Liver & bone mets AGAIN. Really?!?!?

The consultation was like a bomb dropping. Mention of getting my ovaries out, 4 cm spot on my liver, multiple spots on my bones. I asked, "Where?" Wondering if they were new spots or growing old spots. They didn't have my scan. I'd get a copy later. Seriously, you destroy my world & don't have all the information to share with me. An exam & then told to get dressed because there is a lot to plan/discuss. Dr never came back. She sent in someone else. Again REALLY? Ports were mentioned, oopherectomy...all by a a complete stranger. Needless to say helplessness set in. Worries about my children. I am so angry and for the first time really scared.